Pseudomyxoma Survivor

Angela Brook

Make a page with JustGiving

Run for Pseudomyxoma Survivor >

About Pseudomyxoma Survivor

Pseudomyxoma Survivor is a non-profit organization, run by patients and caregivers. We have a thriving support community providing emotional support to anyone whose life has been touched by pseudomyxoma peritonei (PMP) as well as appendix cancer and other peritoneal surface malignancies. As these diseases are so rare is so rare, having a global presence gives the community a scale where it is able to offer genuine support and advice around the clock – both emotional and practical. Patients, caregivers and families have joined together to create an online ‘family’.

Together we:

  • offer practical and emotional advice on managing symptoms and all aspects of living with this rare disease
  • manage a one-to-one buddy system
  • fund small grants to help patients and caregivers with the impact of treatment
  • support research

As a non-profit organisation, we’re completely dependent on voluntary donations. We’re too small to have offices or staff; the charity is run entirely by volunteers. Our patron is Sean Hepburn Ferrer. Sean’s mother, Audrey Hepburn, passed away shortly after being diagnosed with PMP. Sean also has a special interest in rare diseases more generally.


Run for Pseudomyxoma Survivor

Apply for a Charity Entry

You can only apply to one Affiliate Charity at a time. For further information on how the Charity Entry process works please see our FAQs.

Please click on the event you would like to participate in:

Virtual 2020 Edinburgh Marathon Festival
   - 2020 Edinburgh Marathon Virtual Challenge >
   - 2020 Edinburgh Half Marathon Virtual Challenge >
   - 2020 EMF Hairy Haggis Team Relay Virtual Challenge >
   - 2020 EMF 10k Virtual Challenge >
   - 2020 EMF 5k Virtual Challenge >
   - 2020 EMF Junior 5K Virtual Challenge >
   - 2020 EMF Junior 2k Virtual Challenge >
   - 2020 EMF Junior 1.5k Virtual Challenge >
   - 2020 EMF Kids Kilometre Virtual Challenge >

Already have your Own Entry?

If you already have your Own Entry, you can pledge to fundraise for Pseudomyxoma Survivor via your My Details account.
Simply log in and click on the link next to your entry.

Registered Charity Number in England and Wales 1143642

Pseudomyxoma SurvivorSHOW CONTACT DETAILS